Nine years ago, finally, our family had an answer. Kastup was diagnosed with autism.
Autism is a complex developmental disorder with its causes and cure still unknown. As the saying goes, "If you have met one child with autism, you have met one child with autism." Every child with Autism Spectrum Disorder (ASD) is unique, with their personalized set of challenges and special gifts. But all young children with ASD, in general, have problems with social interactions, impaired verbal and nonverbal communication and patterns of repetitive behavior with narrow and restricted interests.
Autism is termed as a 'spectrum disorder,' as the severity of symptoms ranges from mild learning and difficulty in social interaction to severe impairment and extremely unusual behavior. The disorder may occur alone, or could be accompanied by other conditions, most commonly mental retardation and seizures.
According to the recent data of Autism Speaks, an international organization working on autism, one in every 68 children is identified with ASD in the United States. However, there is no reliable estimate for Nepal as autism is not known to many people. Experts have estimated that there are about 2,50,000-3,00,000 Persons with Autism (PWAs) in Nepal among which about 60,000-90,000 are severely affected.
Autism can affect any child. It doesn't discriminate on the grounds of economic status, life style choices, education levels, race, ethnicity, or religion. Although the overall incidence of autism is consistent around the globe, it is four times more prevalent in boys than in girls.
This year, more children will be diagnosed with ASD than with cystic fibrosis, AIDS and cancer combined. With such alarming incidence rate, establishing institutions and mechanisms providing services for PWAs should be a national health priority. However, the reality is upsetting. With insufficient government interest, minor private investments and only a handful of organizations concerned with autism, the situation looks bleak.
In developed nations, various institutions are found catering to autistic kids, in form of rehabilitation, education, insurance, training, interventions and even allowance. People aren't privileged with such services here and have to fly off across borders to get them. In absence of services, people with autism are deprived of chances at a better life.
Institutions solely focused on autism could be a beacon of hope to parents of children with autism. With active citizenry, government focus and increased expertise, dealing with autism wouldn't be as daunting.
This article has been written on the occasion of World Autism Awareness Day celebrated annually on April 2. Autism Care Nepal is conducting an awareness program in the premises of Basantapur from 5 pm onwards on the day. Interested and concerned individuals are cordially invited.
Govt to develop guidelines for autism care in children
This article has been written on the occasion of World Autism Awareness Day celebrated annually on April 2. Autism Care Nepal is conducting an awareness program in the premises of Basantapur from 5 pm onwards on the day. Interested and concerned individuals are cordially invited.
