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One of Nepal’s largest online fundraising drives to defeat a deadly disease raises 140 million rupees in months
December 1, 2020 11:00 am
KATHMANDU, Dec 1: Saving Siyona Shrestha, a 14-month-old baby girl who is gradually losing her strength to a rare disease, was solely her parents' battle until six months ago. Despite being a doctor and nurse themselves, Siyona's father Sandeep and mother Aleena had heard of the deadly 'spinal muscular atrophy – type1' for the first time. Their baby was going to live for two years (Sept 2021), unless a very expensive treatment, available only in the USA, is provided. More than 250 million was needed. Even selling off all their assets wouldn't cover the cost. Their happiness crumbled.
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